Table 1 (abstract P271). See text for description
From: Proceedings of the 28th European Paediatric Rheumatology Congress (PReS 2022)
Clinical care: Lead – C. Papadopoulou | Science & research: Lead – S. Veldkamp | Education & training: Lead – R. Campanilho-Marques | Collaborative working: Lead – L.McCann / H. Sanner |
|---|---|---|---|
Study of sleep / fatigue in JDM. Work in progress for revised grant submission (CP). | Collaborative opportunities in basic science /translational research. | Podcast - Myositis Specific Antibodies available on PReS website JDM WP tab (as well as narrated PowerPoint on MSAs & training tools for MMT8 / CMAS). | CARRA / PReS JDM WP SIG: Study on physical activity in JDM - Research proposal circulated for comments April 2022 (HS). |
Survey of practice in JDM / SHARE survey – write up in progress (OKC). | Updates given during meetings. | Preparing MCQ questions for PReS Knowledge Based Exam. | CARRA / PReS JDM WP SIG: Telemedicine in JDM – survey in progress. |
Publication: Rational for a position statement on Developmentally appropriate Transitional Care during the Covid pandemic: McDonagh J et al, Pediatric Rheumatology (2021) 19: 136. https://doiorg.publicaciones.saludcastillayleon.es/10.1186/s12969-021-00609-y | Open educational session Nov 2021: What’s wrong with tools in JDM (Brian Feldman). | Planning JDM course 2023. | IMACS / PReS JDM WP SIG: Extension of the Single Hub & Access point for paediatric Rheumatology in Europe (SHARE) consensus guidance; survey prepared, to be distributed after IRB approval. |