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Table 4 Young people and families’ disease-related and socio-demographic information

From: “I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis

Characteristics

Young people included in dyads (n = 13)a

Age in years, median (range)

12 (8, 17)

Gender, n (%)

Girl

11 (85)

Boy

2 (15)

JIA subtype, n (%)

(n = 10)b

Polyarticular

4 (40)

Oligoarticular

3 (30)

Psoriatic arthritis

1 (10)

Systemic

1 (10)

Enthesitis-related

1 (10)

Disease duration, years, median (range)

7 (1, 13)

Disease activity, n (%)

Inactive disease

8 (62)

Active disease

5 (38)

Pain intensity in the past week, median (range)c

Young people report

Parent report

(n = 11)b

30 (3, 60)

(n = 12)b

25 (0, 45)

Country of residence, n (%)

Canada

11 (85)

United States

2 (15)

Cultural background, n (%)d

(n = 12)b

Canadian

8 (67)

European

3 (25)

African

1 (8)

Asian

1 (8)

Parents’ level of education, n (%)

(n = 12)b

High school completed

1 (8)

College/Cegep

4 (33)

University

7 (58)

Family income (range), n (%)

(n = 11)b

Less than $14,999

1 (9)

$35,000-$44,999

1 (9)

$65,000-$74,999

1 (9)

$75,000-$84,999

2 (18)

$85,000-$94,999

3 (27)

More than $95,000

3 (27)

  1. aInformation on 13 young people from the dyads even if one of the young people did not participate in the interview
  2. b Some of the variables had missing data
  3. cVisual analog scale 0–100, with 0: no pain, 100: worst pain
  4. dSome participants identified with more than one cultural background