Table 2 Responses to closed-ended questions
Does your hospital team have access to mental health support services for you or your child/young person if you need them? | |
Yes | 116 (40%) |
No | 22 (8%) |
Unaware | 153 (53%) |
Total | 291 (100%) |
Have you or your child/young person been offered access to mental health support services during appointments for JIA? | |
Yes | 106 (36%) |
No | 157 (54%) |
Not sure | 28 (10%) |
Total | 291 (100%) |
If no, did you or you child/young person get mental health support from somewhere else? | |
Yes | 28 (20%) |
No | 71 (50%) |
Have not needed mental health support | 42 (30%) |
Total | 141 |
If you are a parent/carer do you think your family’s mental health has been impacted by your child or young person’s diagnosis? (respondents could select for both parents and siblings Y/N and not sure) | |
Yes impact on parents | 218 (82%) |
Yes, impact on siblings | 126 (47%) |
No impact on parents | 18 (7%) |
No impact on siblings | 19 (7%) |
Not sure | 26 (10%) |
If yes to PARENTS, have you been able to access relevant and suitable mental health support? | |
Yes | 31 (14%) |
No | 59 (27%) |
I have not tried to access support | 100 (46%) |
Did not answer | 28 (13%) |
Comments | 27 |
If yes to SIBLINGS, have you been able to access relevant and suitable mental health support for them? | |
Yes | 14 (11%) |
No | 32 (25%) |
I have not tried to access support | 68 (54%) |
Did not answer | 12 (10%) |
Comments | 10 |
What is the current situation of you or your child/young person regarding mental health support? | |
Waiting to go on a waiting list | 25 (9%) |
On a waiting list | 30 (10%) |
Being seen | 51 (18%) |
Finished care sessions | 62 (21%) |
Have not needed mental health support | 115 (40%) |
Did not answer | 8 (3%) |
Total who answered | 283 |