Table 1 Demographic and social characteristics of all participants included in this analysis as well as stratified by registry
All participants (n = 1222) | Legacy Registry (n = 740) | New Registry (n = 482) | |
|---|---|---|---|
Age at visit years (mean, SD) | 15.2 (3.2) | 15.8 (3.2) | 14.4 (2.9) |
Sex, n(%) | |||
Female | 1023 (83.7) | 619 (83.6) | 404 (83.8) |
Race/Ethnicity; n(%) | |||
Non-Hispanic White | 387 (31.7) | 248 (33.5) | 139 (28.8) |
Non-Hispanic Black | 361 (29.5) | 224 (30.3) | 137 (28.4) |
Hispanic | 310 (25.4) | 181 (24.5) | 129 (26.8) |
Other/unknown | 164 (13.4) | 87 (11.8) | 77 (16) |
Income | |||
<25k | 194 (15.9) | 131 (17.7) | 63 (13.1) |
25-49.9k | 200 (16.4) | 126 (17) | 74 (15.4) |
50-74.9k | 118 (9.7) | 75 (10.1) | 43 (8.9) |
75-99.9k | 102 (8.4) | 61 (8.2) | 41 (8.5) |
100-150k | 112 (9.2) | 71 (9.6) | 41 (8.5) |
>150k | 91 (7.5) | 47 (6.4) | 44 (9.1) |
Unknown and missing | 405 (33.1) | 229 (31) | 176 (36.5) |
Education; n(%) | Not collected | ||
Elementary/middle school | -- | 17 (3.8) | |
Some high school | -- | 23 (5.2) | |
Graduated high school | -- | 103 (23) | |
College | -- | 163 (36.5) | |
Graduate school | -- | 63 (14.1) | |
Prefer not to answer | -- | 78 (17.5) | |
Total number of visits (baseline and follow-up) | 2831 | 1703 | 1128 |
Visits with rash | 437 (15%) | 249 (15%) | 188 (17%) |
Visits with SLEDAI ≥ 5 | 860 (30%) | 473 (27%) | 387 (35%) |