Table 2 Participant self-report of reproductive health screening and counseling by healthcare providers
Current Teratogen Use | ||||||
|---|---|---|---|---|---|---|
Overall (N = 108) | Teratogen (n = 39) | None (n = 69) | ||||
Reproductive Health Screening/Counseling (Has provider ever…) | n (Percent) | n (Percent) | n (Percent) | |||
Pediatric Rheumatologist: | ||||||
Asked about sexual activity | 41 (38) | 21 (54) | 20 (29) | |||
Counseled risk of disease or medication on health of fetus | 35 (32) | 20 (51) | 15 (22)** | |||
Told should not get pregnant due to medication for rheumatic disease | 29 (27) | 17 (44) | 12 (17)** | |||
Talked about how to prevent pregnancy | 18 (17) | 9 (23) | 9 (13) | |||
Talked about how to get or use emergency contraception | 6 (6) | 3 (8) | 3 (4) | |||
Received no screening/counseling | 50 (46) | 11 (28) | 39 (57)** | |||
Any Provider: | ||||||
Asked about sexual activity | 89 (82) | 33 (85) | 56 (81) | |||
Counseled risk of disease or medication on health of fetus | 38 (35) | 21 (54) | 17 (25)** | |||
Told should not get pregnant due to medication for rheumatic disease | 30 (28) | 17 (44) | 13 (19)** | |||
Talked about how to prevent pregnancy | 60 (56) | 23 (59) | 37 (54) | |||
Talked about how to get or use emergency contraception | 22 (20) | 11 (28) | 11 (16) | |||
Received no screening/counseling | 12 (11) | 5 (13) | 7 (10) | |||
Key Knowledge Assessment | ||||||
“The medicine I am on for my rheumatic disease could be bad for my baby if I were to become pregnant.” | ||||||
Yes | 46 (43) | 24 (62) | 22 (32)** | |||
No | 9 (8) | 3 (8) | 6 (9) | |||
Unsure | 53 (49) | 12 (31) | 41 (59) | |||
“If I get pregnant, I should immediately stop all my medications.” | ||||||
Yes | 22(20) | 9 (23) | 13 (19) | |||
No | 18 (17) | 6 (15) | 12 (17) | |||
Unsure | 68 (63) | 24 (62) | 44 (64) | |||