Table 2 Characteristics of the children of participants
Characteristics | No. (%) n = 17 |
|---|---|
Females Males | 9 (53) 8 (47) |
Country of birth | |
Australia Other | 16 (94) 1 (6) |
Religion | |
Religious affiliation | 10 (59) |
Ethnicity | |
Caucasian/Australian CALD | 13 (76) 4 (24) |
Clinical presentation of illness | |
Muscle weakness Skin rash Lethargy Pain Falls | 8 (47) 11 (65) 1 (6) 4 (24) 2 (12) |
Age at diagnosis | |
1–5 years 6–11 years 12–15 years 15–20 years | 8 (47) 4 (24) 5 (29) 0 (0) |
Current treatment | |
Prednisone Methotrexate IVIG Other DMARD Tofacitinib None | 6 (33) 11 (61) 3 (17) 1 (5) 2 (11) 4 (22) |
Previous treatment | |
None Methylprednisone Prednisone IVIG Methotrexate Other DMARD | 3 (17) 4 (22) 10 (56) 1 (5) 7 (39) 1 (5) |
Comorbidities | |
None Perthes disease Asthma Coeliac disease ADHD Osteoporosis Skin striae | 11 (61) 1 (5) 1 (5) 1 (5) 1 (5) 1 (5) 2 (11) |
No. of doctors initially referred to | |
1 2 3 4 | 4 (22) 11(61) 2(11) 1(6) |
Duration of illness (years) | |
1–2 | 7 (40) |
3–5 | 7 (40) |
6–10 | 3 (20) |